Achieving Balance in State Pain Policy: A Progress Report Card (CY 2012)The PPSG is pleased to announce the release of Achieving Balance in State Pain Policy: A Progress Report Card (CY 2012). This report contains a grade for each state and the District of Columbia, which represents the extent that state policies can support pain management and patient care.
Action on Pain Action on Pain takes an active role in providing advice and support to both people living with pain and those affected by it’s intrusive effects on daily life. Working closely with other organizations both in the UK and Internationally, the team strives to raise the profile of pain with politicians, NHS Managers and health professionals.
AgrAbility Project Helps Farmers and Ranchers with Disabilities and Chronic Health Conditions Find Solutions that Change Their Lives. Every year, hundreds of thousands of people working in agriculture are injured or experience the on-set of chronic health conditions that limit their abilities to continue farming.
Alliance for Aging Research Alliance for Aging Research is the nation’s leading citizen advocacy organization for improving the health and independence of Americans as they age. The Alliance was founded in 1986 to promote medical and behavioral research into the aging process. Since then, and as the explosion of the Senior Boom approaches, the Alliance has become the voice for Baby Boomer health by developing, implementing and advocating programs in research, professional and consumer health education and public policy.
Educate patients about anesthesia, pain management and the medical experts committed to patient safety and high-quality care during surgery, procedures and other treatments.
Alert patients and policymakers to the importance of patient-centered, physician-led care and the critical role physician anesthesiologists play in ensuring patient safety.
AntidoteMatch Antidote is a digital health company leading a collaborative effort to advance medical research by transforming the way people connect with it – so that breakthroughs happen faster. Their clinical trials search tool, Antidote Match, uses natural language processing, machine learning, and a team of medical experts to help patients find their best clinical trial matches, creating a world of clarity and accessibility for all.
APhA Opioid Resource Center APhA works closely to monitor, respond and inform our members about opioid use, abuse, and misuse. This site will be updated with new information and resources as they become available.
Asbestos.com Our mission is to help even the odds for families fighting this disease. We achieve that by providing you and your loved ones the most complete information about mesothelioma, new treatments and support. You’ve come to the right place.
Australian Pain Management Association APMA’s website aims to offer pain management options and information for people with pain, their families and friends. Health care professionals will also find the site interesting and informative.
Cleveland Clinic Ranked one of America’s top hospitals by U.S. News & World report.
CISCRP The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.
Clinical Trials Transformation Initiative (CTTI) The Clinical Trials Transformation Initiative (CTTI) is a public-private partnership to identify practices that will increase the quality and efficiency of clinical trials. CTTI now comprises more than 60 organizations from acrosss the clinical trial enterprise.
Consumer Pain Advocacy Task Force (CPATF) Consumer Pain Advocacy Task Force (CPATF) is comprised of national leaders and decision-makers from 16 consumer-nonprofit organizations that are dedicated to patient well-being and supporting the use of effective methods for pain treatment. The State Pain Policy Advocacy Network (SPPAN) first convened these leaders in March 2014 to organize a collective action effort to benefit people with pain.
ConsumerSafetyGuide.org We want consumers to be informed. If you are injured or made ill by a product, it is possible legal action is an option. Our site provides information for users of dangerous drugs and defective medical devices.If you want to keep up with important information about recalled products and receive case reviews for individuals affected by defective drugs and devices, we can help.
Caring4OurKids We are a group of parents who have children on the Autism Spectrum or who suffer from inflammatory diseases such as Chronic Fatigue Syndrome or Fibromyalgia. Recent studies suggest a link between these conditions. We each know how overwhelming it can be when your child is first diagnosed. As well, we understand the daily struggle as well as the joys of raising these very special children. We have come together to curate and create resources that have been helpful to us in the hopes that these will help other parents struggling to care for and to help their children thrive.
Disability.gov Welcome to Disability.gov, the U.S. federal government website for information on disability programs and services nationwide. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need. Let Disability.gov be your guide!
Eat Healthy, Be Active Community Workshops The Dietary Guidelines encourage Americans to eat a healthful diet — one that focuses on foods and beverages that help achieve and maintain a healthy weight, promote health, and prevent disease. The U.S. Department of Health and Human Services (HHS) and the U.S. Department of Agriculture (USDA) have jointly published the Dietary Guidelines every 5 years since 1980.
Eligibility.com Eligibility.com is not the government, or a government agency. We are a private company. But, that’s good! We provide a valuable service to millions of people researching their benefits and eligibility for programs in the U.S. Government programs and their websites can sometimes be confusing. We want to make the process easier for you to understand. Best of all, we never charge for our services. We are a 100% free advocate who has committed to answering every single question asked via our website, social media, and call center. From unemployment benefits to programs for seniors, Eligibility.com has all the answers. Our expert editorial team continually researches each program for updates and new information, and publishes it for you.
End-of-Life Nursing Consortium The End-of-Life Nursing Education Consortium (ELNEC) project is a national education initiative to improve end-of-life care in the United States. The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators, specialty nurses in pediatrics, oncology, critical care and geriatrics, and other nurses with training in end-of-life care so they can teach this essential information to nursing students and practicing nurses.
Evidence-based Health Care? What is Evidence-based Health Care? Evidence-based Health Care (EBH) is a concept of determining a patient’s treatment by combining balanced amounts of scientific evidence, physician judgment and expertise, and patient experience. Scientific Proof + Doctor’s Expertise + Patient’s Experiences = Evidence-based Health Care
The Exchange The Exchange is a partnership formed to exchange information and resources about health communication and to share multilingual health materials. The Exchange resources and information are open to everyone, but our online library of translated health materials and our forum are for members only. Below, find more information about how our members services work.
FDA Voice FDA’s official blog brought to you from FDA’s senior leadership and staff stationed at home and abroad – sharing news, background, announcements and other information about the work done at the FDA on behalf of the American public.
Fight4rx Fight4Rx is a non-partisan grassroots effort of the National Community Pharmacists Association aimed at educating patients about the value of their local community pharmacy. Pharmacists play a role every day in the lives of patients by improving health care while reducing costs. With health care issues taking center stage in Washington, DC, it is vital that patients remain engaged in protecting their access to safe and affordable medicine. Fight4Rx provides you with the tools you need to learn about the changing health care market, and how your community pharmacy plays a key role.
Families USA Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, we have earned a national reputation as an effective voice for health care consumers for 25 years.
FDA The FDA is responsible for protecting the public health by assuring the safety, efficacy, and security of human and veterinary drugs, biological products, medical devices, our nation’s food supply, cosmetics, and products that emit radiation. The FDA is also responsible for advancing the public health by helping to speed innovations that make medicines and foods more effective, safer, and more affordable; and helping the public get the accurate, science-based information they need to use medicines and foods to improve their health.
FiscalTiger Affording and Paying for Healthcare guide from Fiscal Tiger, a website focusing on providing resources for people to help with their finances. This free guide — with topics ranging from medical bill basics to medical debt resources for veterans.
Guide to Disability Claims If you become disabled and can no longer work, disability insurance plans and government disability programs offer potential sources of replacement income in the form of disability benefit payments. These sources of income can become a lifeline for you and your family should the unthinkable happen. The Complete Guide to Disability Claims, Insurance and Benefits is your one-stop source for disability benefit information.
Health Finder healthfinder.gov is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder.gov has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder.gov links to carefully selected information and Web sites from over 1,500 health-related organizations.
Health Finder – Spanish healthfinder.gov is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder.gov has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder.gov links to carefully selected information and Web sites from over 1,500 health-related organizations, in spanish.
Healthy Aging Program The Healthy Aging Program at the Centers for Disease Control and Prevention has released a new report, The State of Aging and Health in American 2013.
Healthy Lifestyle Resources When it comes to weight loss, there’s no lack of fad diets promising fast results. But such diets limit your nutritional intake, can be unhealthy, and tend to fail in the long run. The key to achieving and maintaining a healthy weight isn’t about short-term dietary changes. It’s about a lifestyle that includes healthy eating, regular physical activity, and balancing the number of calories you consume with the number of calories your body uses. Staying in control of your weight contributes to good health now and as you age.
Healthy People 2020 Healthy People 2010 challenges individuals, communities, and professionals—indeed, all of us— to take specific steps to ensure that good health, as well as long life, are enjoyed by all.
Intercultural Cancer Council The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
International Alliance of Patient Organizations International Alliance of Patient Organizations: IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world. Our members are patients’ organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
International Integrative Medicine Day IIM Day inspires worldwide dialog, education, collaboration, research initiatives and programming about medicine that is patent-centered, holistic, economically and environmentally sustainable, and conscious of integrating different global medical systems.
Joint Commission on Accreditation of Healthcare Organization (JCAHO) An independent, not-for-profit organization, The Joint Commission accredits and certifies more than 15,000 health care organizations and programs in the United States. Joint Commission accreditation and certification is recognized nationwide as a symbol of quality that reflects an organization’s commitment to meeting certain performance standards.
Know Your Dose Know Your Dose – New Campaign on Appropriate Use of AcetaminophenAcetaminophen is found in more than 600 different prescription and over-the-counter medicines, including pain relievers, fever reducers, and sleep aids as well as cough, cold, and allergy medicines. On prescription labels, acetaminophen is sometimes listed as “APAP,” “acetam,” or other shortened versions of the word. When used as directed, acetaminophen is safe and effective, but there is a limit to how much you can take in one day. Taking more acetaminophen than directed is an overdose and can lead to liver damage.The Know Your Dose campaign is raising awareness of this important topic by educating patients and consumers on how to appropriately use medicines that contain acetaminophen.
KnowYourOTC’s.org OTC medicines can help you treat a variety of ailments. Be confident in the decisions you make to use, store, and dispose of your medicines safely
Mayday Fund Watch this short video featuring Dr. Diane E. Meier, director of the Center to Advance Palliative Care, as an example of clear communication about health and medical issues. The Mayday Fund supported the development of this video to help health care professionals understand the importance of good communication as well as excellent treatment when it comes to pain and palliative care.
Mayo Clinic Mayo Clinic is a not-for-profit medical practice dedicated to the diagnosis and treatment of virtually every type of complex illness. Mayo Clinic staff members work together to meet your needs. You will see as many doctors, specialists and other health care professionals as needed to provide comprehensive diagnosis, understandable answers and effective treatment.
MedSun (Medical Product Safety Network) Medical Product Safety Network (MedSun) improves FDA’s understanding of problems with the use of medical devices so that the FDA, healthcare facilities, clinicians, and manufacturers can better address safety concerns. The MedSun Web page is a newsletter-based website which provides monthly updates about timely medical device issues that may impact patient safety. This website also provides public access to de-identified reports sent into the MedSun program, in addition to important safety information to MedSun participants and to the national clinical community about reported problems.
Military OneSource Military OneSource is a valuable tool for military members and their families.
National Alliance for Spanish Health The National Alliance for Hispanic Health (the Alliance) is the premier science-based nonprofit 501(c)(3) organization that focuses on improving the health and well-being of Hispanics. As the nation’s action, advocacy, and research forum for Hispanic health, we push for health care reform that creates the best outcomes for all, ensure accountability, and inform and mobilize consumers. We advocate on behalf of Hispanics, help health and human service providers deliver quality, culturally-proficient care, and promote philanthropy. Equally, we encourage culturally-inclusive research to produce better-informed conclusions and decision making, and advance uses of technology that benefit the environment.
National Alliance for Caregiving The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one.
National Black Deaf Advocates The mission on the National Black Deaf Advocates is to promote leadership development, economic and educational opportunities, social equality, and to safeguard the general health and welfare of Black deaf and the heard of hearing.
National Community Pharmacists Association The National Community Pharmacists Association (NCPA®) represents the interests of America’s community pharmacists, including the owners of more than 23,000 independent community pharmacies, pharmacy franchises, and chains.
National Consumer League NCL provides government, businesses, and other organizations with the consumer’s perspective on concerns including child labor, privacy, food safety, and medication information.
National Institute of Health NIH is the nation’s medical research agency – making important medical discoveries that improve health and save lives.The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people’s health and save lives, NIH scientists investigate ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.
National Senior Citizen Law Center The National Senior Citizens Law Center is a non-profit organization whose principal mission is to protect the rights of low-income older adults. Through advocacy, litigation, and the education and counseling of local advocates, we seek to ensure the health and economic security of those with limited income and resources, and access to the courts for all.
National Urban League Established in 1910, The Urban League is the nation’s oldest and largest community- based movement devoted to empowering African Americans to enter the economic and social mainstream. Today, the National Urban League, headquartered in New York City, spearheads the non-partisan efforts of its local affiliates. There are over 100 local affiliates of the National Urban League located in 35 states and the District of Columbia providing direct services to more than 2 million people nationwide through programs, advocacy and research.
National Fibromyalgia & Chronic Pain Association The National Fibromyalgia & Chronic Pain Association unites patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.
National Women’s Health Resource The not-for-profit National Women’s Health Resource Center (NWHRC) is the leading independent health information source for women. NWHRC develops and distributes up-to-date and objective women’s health information based on the latest advances in medical research and practice.
PAIN Exhibit The PAIN Exhibit is an educational, visual arts exhibit from artists with chronic pain with their art expressing some facet of the pain experience. The mission is to educate healthcare providers and the public about chronic pain through art, and to give voice to the many who suffer in abject silence.
Pain Association Scotland Joining a support group offers the opportunity to be listened to, to talk about how you feel, hear how others cope with similar problems and learn actively to control pain. Pain Association offers groups across the country.
Pain Concern We focus on the UK, providing a helpline, leaflets, and a magazine, Pain Matters. Our most recent project an internet radio program, Airing Pain, provides reliable information and support that is relevant to all people living with chronic pain. Because these programs remain accessible as podcasts the information and support is available when it is needed.
PainACTION PainACTION is a self-management program designed to educate and empower people with chronic pain by offering access to personalized pain management strategies. Features include: an online pain journal to track pain and print reports; information about evidence-based pain treatments and research findings; interactive tools for self-assessment and self-help; peer stories; and the latest pain-related news.
Pathways to Safer Opioid Use Pathways to Safer Opioid Use is an immersive, interactive training tool that was designed using the opioid-related recommendations outlined in the National Action Plan for Adverse Drug Event Prevention (ADE Action Plan). The training uses the principles of health literacy and a multimodal, team-based approach to promote the appropriate, safe, and effective use of opioids to manage chronic pain.This web-based training allows you to assume the role of 4 playable characters who make decisions – controlled by you – about preventing opioid-related adverse drug events (ADEs). The characters represent the following roles: primary care physician, nurse, pharmacist, and patient.In this behavior-based training using interactive video, you will learn how to:
Apply health literacy strategies to help patients understand and act on information to prevent opioid-related ADEs
Identify individual risk factors, opioid medications, and interactions that place individuals with chronic pain at increased risk for opioid-related ADEs.
Recognize the importance of a multidisciplinary, team-based approach to treating patients with chronic pain
Demonstrate the ability to combine the principles of the Health Literate Care Model and the biopsychosocial model of chronic pain management through case study examples
PleuralMesothelioma.com Part of our mission at PleuralMesothelioma.com is to provide current, reliable data on all topics relating to pleural mesothelioma cancer. We are dedicated to compiling the latest and most up-to-date information on pleural mesothelioma and offer a number of resources to those coping with the pulmonary cancer. From treatment options to top doctors and the best cancer centers in the United States, PleuralMesothelioma.com is a one-stop resource for pleural mesothelioma patients and their families.
Poison Prevention Week Council In 2012, the Poison Prevention Week Council turned 50 Years Old! The Poison Prevention Week Council provides information about the events associated with National Poison Prevention Week, the steps that you can take to help prevent accidental poisonings and tips for promoting community involvement in poison prevention.
Recall Guide Recall Guide is a free, non-commercial tool that provides access to information about FDA recalls, warnings, hazardous interactions, and other important information about your prescriptions and medications. Recall Guide constantly monitors over 68,000 over-the-counter prescriptions and medications to keep its users safe and conscious about their health.
RecallReport.org Recall Report is the web’s leading resource for information about health and safety recalls, including dangerous drugs and associated mental conditions. With dedicated areas of our website for health conditions at recallreport.org/health-information/conditions/, we have more medical information than any other consumer recall website.
Returning Veterans to Agriculture Project This site is dedicated to gathering and communicating resources for veterans who are interested in returning to or starting careers in agriculture and in rural communities. America’s farmers and rural communities are vitally important to our nation’s economy, producing the food, feed, fiber and fuel that continue to help us grow. America needs generations of leaders in American agriculture to continue our position as the number one agricultural country in the world.
Samaritan Hospice Samaritan is a not-for-profit organization that contributes to the health and well-being of our community. We provide unparalleled services with respect, dignity, and compassion for all people affected by serious, progressive illness or grief. Samaritan is the leader in hospice, palliative care, grief support, education, advocacy and other life-enhancing services.
Script Your Future Having a serious long-term health problem can take away your chances of a long and full life with your family – if you let it. The Script Your Future campaign is designed to help you take back your future by helping you take your medicine as directed. Script Your Future is here to help people like you manage health problems such as diabetes, COPD, asthma, high blood pressure or high cholesterol.
The Soldiers Project We provide free counseling and support to military service members who have served or who expect to serve in the Iraq and/or Afghanistan conflicts and to veterans of those conflicts. We see active duty as well as members of activated Reserve or Guard units. In addition, our services are available to the families and other loved ones of service members. We provide help to service members and families struggling with issues related to the overwhelming trauma of war including the cycle from pre-deployment to deployment to homecoming and re-entry to civilian life. Our services are readily accessible and entirely free of charge. We do not report to any government agency.
Thesimpledollar.com/disability-benefits-guide TheSimpleDollar.com was created to help people make truly better decisions by clearly laying out their options with content topics spearheaded by leading industry professionals. Because of their unbiased approach, they have been a trusted source for government entities and organization throughout the US.
Up and Away Up and Away campaign, aims to raise awareness of safe medicine storage among parents and thereby reduce the risk of accidental unsupervised ingestion among young children.
Veterans Care Guide Individuals who serve within the United States Military may qualify for certain monetary and medical benefits through the US Office of Veterans Affairs. These may include a monthly financial pension, Aid & Attendance, Housebound benefits and/or Specially Adapted Housing grants. This guide is designed to help veterans and/or their surviving spouses determine their eligibility, explain how to apply for benefits and cover the various veteran care options.
VetsinPain The mission of the ACPA Veterans Program (VIP) is to assist US Veterans who live with pain.. We recognize Veterans have specific needs and the American Chronic Pain Association has developed a program to provide peer support and education in pain management.
We Connect Now The website was developed to connect and integrate college students with disabilities as a virtual community with a voice on important issues with particular emphasis on college students and access to higher education and employment. The WE Connect Now website has been up and serving college students with disabilities since 2008.
Weight-Control Information Network The Weight-control Information Network provides the general public, health professionals, the media,and Congress with up-to-date, science-based information on weight control, obesity, physical activity, and related nutritional issues.
Your Survival Guide to Safe and Healthy Travel Every year more and more Americans are traveling internationally — for vacation, business, and volunteerism, and to visit friends and family. Whatever your reason for traveling, the information on this page will help you to be Proactive, Prepared, and Protected when it comes to your health—and the health of others—while you are traveling.